Monday, April 28, 2008

Thank You

I would just like to say thank you to all those caring and wonderful people who took time to leave me a comment on this blog or send me an email.

It is a difficult time for me at the moment and reading all your messages helps a great deal.

I was going to close down this blog but decided I will let it run a little longer and add a few entries on how I am coping and what I have learnt from this experience - maybe someone will find some small measure of hope or comfort or even help from it.

Once again - thank you.


Saturday, April 05, 2008




Philip lost his fight at about 9.15 this morning.

Pinegrove Memorial Gardens
Friday 11th April
11am - North Chapel




Tuesday, April 01, 2008

On Monday we decided (Philip, myself and the Drs) to slowly increased sedation for Philip and decrease other drugs so he will end up being sedated all the time and free from the seizure pain. The Drs think that the end is only weeks away not months and even possibly days. We are just hoping he goes quickly and without this terrible pain.